Patient advocacy groups are protesting the governments shutdown of public access to data on malpractice and disciplinary actions involving thousands of doctors nationwide.
The National Practitioner Data Bank maintains confidential records that state medical boards, hospitals and insurance plans use in granting licenses or staff privileges to doctors.
Although records naming physicians arent available to the public, the data bank for many years provided access to its reports with the names of doctors and hospitals and other identifying information removed.
That changed Sept. 1 when the data bank removed these public-use files from its website. The action came shortly after it learned The Kansas City Star planned to use its reports.
The story, about doctors with long histories of alleged malpractice but who have not been disciplined by the Kansas or Missouri medical boards, was published on Sept. 4.
The Star linked anonymous data bank reports to a Johnson County neurosurgeon by matching its information to the contents of court records of malpractice cases. Journalists often use this technique to glean additional information about doctors from the data.
Weve seen (The Stars) reporting and others that show your ability to triangulate on data bank data. We have a responsibility to make sure under federal law that it remains confidential, said Martin Kramer, spokesman for the Health and Human Services Departments Health Resources and Services Administration, the agency that oversees the data bank.
Kramer said his agency may make the public-use files available again after a thorough analysis of the data field. But that process probably will take at least six months and the files may not return in the same format as they had been.
Previously, the files could be downloaded from the data bank website as massive spreadsheets. Names of doctors were replaced by arbitrarily assigned practitioner numbers.
The ages of doctors and patients, as well as the dollar sums of malpractice payments, were presented as ranges, such as a doctor age 40 to 49, rather than as specific numbers.
The bank is not mandated to make public files immediately accessible on its website, but is required to respond to information requests.
Whatever they do will probably make it more difficult to use the files in meaningful ways, said Alan Levine, a health care researcher with Public Citizens Health Research Group, which advocates for patient safety
On Tuesday, Public Citizen sent a letter to the Health Resources and Services Administration objecting to the removal of the public-use files.
The continued availability of this data is crucial to patient safety and research aimed at informed public policy decisions concerning malpractice, tort reform, peer review, and medical licensing. There simply is no substitute for the NPDB Public Use Data File if this vital research is to be continued, the letter said.
The Association of Health Care Journalists also opposes removal of the files.
Were really disturbed by this, said Charles Ornstein, president of the medical writer group. Weve seen our members do terrific work (with the files) that protects the public.
Ornstein pointed to stories by the Hartford Courant in Connecticut and the Raleigh News & Observer in North Carolina citing the data banks public use files as a source on doctors whom they named.
If it were not for this information used by reporters, their stories would not have been as strong, he said.
To read the complete article, visit www.kansascity.com.